Sunday, October 16, 2016

Our First Camping Trip

Guest post by Mr. Graff! This one is from awhile ago, we actually just survived our second family camping trip. 

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Our first family camping trip was a success!



By which I mean we ate food, slept in a tent, and did a little bit of hiking. And rock climbing. 





And playing in water fountains.  That was the best game ever.  Once the little boys figure that game out, we were afraid we wouldn’t see them again.  At least we knew where to find them.




We got to our campsite, up in the mountains of Hawaii, in the “African plants” section of the botanical garden.  We set up our tent, pulled some things out of the car, and dashed for cover as it started pouring.  Rae and I (and some of our foodstuff) went to the tent, while Icie and the others found cover in the dish-washing area.  




I’m glad they were able to stay dry.

After playing in sinks, water fountains, etc, we decided to try hiking.  We found a lake!  We’re all about water, there. 


We also found a butter tree. Not sure how to harvest butter from it, but we’re willing to try planting one and finding out when we have some yard space of our own.



We went back to camp and started cooking dinner.  As it turned out, we were so focused on boys, clothes, food, bedding, etc that we forgot to bring any lighter fluid or candle or anything to get the fire going.  And a pot for all of the things we brought that would cook in or with boiling water.  And the apples got left behind, too. We did have a propane stove, though, and a boy scout hibachi grill.  Dang it, I was going to have a fire!




It worked.  Even with all the rain.  Icie and I had bread and cold lentil curry while the fire was getting going, and the boys had all the bread, cheese, and raisins they could handle.  Then we got down to making s’mores. Rae liked making s’mores more that he liked actually eating them!




When it was time for bed, we found out that the boys were absolutely determined to sleep on the cots we’d brought for ourselves.  And, after we’d won, that we couldn’t actually sleep on the cots we’d brought for ourselves.  We’re going to have to work on that.

The next morning, I was the only one to have oatmeal for breakfast.  It turns out that everyone else likes their oatmeal cooked, and you know, we’d forgotten that pot to boil water.  We had plenty of bread, cheese, and raisins, though, which was some of the boys’ favorite foods.  Some of us got leftover chocolate and mallows, too.

We played in the water fountains some more, and packed up our camp.  There was a nice Buddhist temple in the area with a huge bell and koi ponds and all sorts of other cool things.  Turns out we forgot to bring the address.

Then we got to the gate and found out that THEY forgot to tell us that the gates didn’t open until 9, so we had a good half hour to drive around and look at all of the gardens and 1900s charcoal kilns before we could leave. Icie liked the walking trees. 



Pretty much everyone fell asleep on the way home. Then when we did get back, this happened.  He never sleeps more than once a day!




Yep, this trip was a success.  We want to do it again sometime.

3 comments:

  1. Hooray! We've yet to try a family camping trip. You guys are so brave. :)

    ReplyDelete
  2. Hello, I stumbled upon your blog while researching pierre robin sequence. My daughter was born 10 days ago also with pierre robin and a cleft palate. I was not previously aware of such condition and there has been a lot of information to digest in a very short period of time. If you get message I would sincerely appreciate any information regarding your personal experience with the tongue lip adhesion process. How soon after the operation did the doctors know it was a successful solution? How did it impact Joe's feeding? What was the recovery time? Were any other procedures beyond the cleft repair necessary? From one parent who hasn't been through the journey to another who has I would be forever grateful of anything you can share. Thank you and God Bless.

    -Mark from Chicago

    ReplyDelete
    Replies
    1. Hello, Mark from Chicago!

      I realize that I am nearly five years too late, but I will try to answer your questions. Joe's TLA (tongue lip adhesion) was successful. He had no obstructive apnea once the swelling went down after surgery. When he was 17 months old, he had his TLA taken down, and though we were in the hospital for a few days, it wasn't bad. He drooled excessively for a few weeks after surgery, too.

      Feeding. That is still an ongoing adventure. When Joe was 2.5 years old he asked for applesauce, then his purees, and then he was eating his whole pureed meal without a tube. He was about 5 years old before he was able to spoon feed himself. He is now 8, almost 9 years old. He still gets his water through his tube, but he is able to eat his own purees and is growing well.

      Communication has been the other big challenge. Because his tongue and face are different, speech has been difficult for Joe. It still is, so we use a variety of other means to help him communicate well.

      I think that as a result of the oral surgeries, Joe developed a cyst under his tongue---it took three separate surgeries to finally correct, but has stayed corrected.

      I hope you and your daughter are doing well!

      -icie

      Delete

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